In case you had not heard, in late 2017 we submitted an application to the National Science Foundation (NSF) Cybersecurity desk to request funding for Project Heartbeat. After their review of the proposal they decided not to fund the project. We will be working to revise the proposal, using the comments provided by the NSF review board, in order to craft a more compelling proposal to submit to the NSF and other potential fund providers. We believe that Project Heartbeat is still a very viable way to help children with HLHS and other rare conditions to easily track their health and easily work with specialists across the countries and across institutional boundaries in a way that institutions currently make difficult or daunting. Thank you all for your support, please keep your eyes peeled for an upcoming request for help to help us craft a better proposal.