Come share the hope with us as we interview Diane Pickles. Diane Pickles is the Program Director of SOURCE at Additional Ventures, a soon to launch large-scale genetic sequencing effort to fuel single ventricle heart disease research. Prior to joining Additional Ventures, Diane was the American Heart Association’s Program Director for One Brave Idea, an adult coronary heart disease research initiative based in Boston. Diane’s work in cardiovascular research follows two decades spent advancing policy solutions for a wide range of nonprofits in public health, education, criminal justice, and other public interest issue areas. Diane has deep expertise in patient advocacy, stakeholder engagement, project management, community organizing, media advocacy, coalition building, lobbying, and fundraising and development. A long time volunteer in the single ventricle community, Diane was a member of the Executive Leadership Team of the Fontan Outcomes Network, a longitudinal registry of single ventricle patients. She has since left the FON ELT since our interview but remains dedicated to improving care and outcomes for individuals with single ventricle heart disease. Diane and her husband have two adult sons, one of whom has Hypoplastic Left Heart Syndrome.
We are experiencing a shortfall so if you haven’t made a donation this year, please consider giving at whatever level you can!
please consider donating to the Micah Mason Foundation so we can support both NPC-QIC and FON in their life changing work.
We are having a Donor Meeting Tonight to talk about HeartWorks and the wonderful work they do and why we support them.
Would you like to join them on our Wall of Awesome? Every donor who is first in a donor level gets a special gift. Donate Now!
Come play games with us, or watch us play games, and pledge to the foundation in the mean time!
Would you like to play a virtual board game with us while raising money to help children who were born with only half a heart? Yes you would!
January 29th 2022 @ 2:30pm join us for a game of randomly generated and sometimes maddeningly insane stories based on the classic 1001 Tales of Arabian Nights!
January 29th @ 11am Live on Facebook watch a team of board gamers play the Peterson Games Classic – Hyperspace!
January 29th 2022 @ 10am, 7pm, and 10pm watch Pat play the Mario game of your choice on Facebook Live to support HeartWorks!