Come share the hope with us as we interview Diane Pickles. Diane Pickles is the Program Director of SOURCE at Additional Ventures, a soon to launch large-scale genetic sequencing effort to fuel single ventricle heart disease research. Prior to joining Additional Ventures, Diane was the American Heart Association’s Program Director for One Brave Idea, an adult coronary heart disease research initiative based in Boston. Diane’s work in cardiovascular research follows two decades spent advancing policy solutions for a wide range of nonprofits in public health, education, criminal justice, and other public interest issue areas. Diane has deep expertise in patient advocacy, stakeholder engagement, project management, community organizing, media advocacy, coalition building, lobbying, and fundraising and development. A long time volunteer in the single ventricle community, Diane was a member of the Executive Leadership Team of the Fontan Outcomes Network, a longitudinal registry of single ventricle patients. She has since left the FON ELT since our interview but remains dedicated to improving care and outcomes for individuals with single ventricle heart disease. Diane and her husband have two adult sons, one of whom has Hypoplastic Left Heart Syndrome.
Come share the hope with us as we interview Tamara, or Tammy, Thomas. In 2007 Tamara, along with her husband Scott, joined the newly formed board of the Ohio Chapter of the Children’s Heart Foundation. CHF Ohio grew and Tammy become the Ohio Chapter President, and began serving on the National Board and Executive Committee in the Chapter Liaison capacity in 2010. In 2014 she became the National Board President of CHF, guiding CHF through an Executive Board transition and creation of a new Strategic Plan for the organization after an 18 month planning process with a terrific team of volunteers. In 2023, Tamara began her 2nd stint as the Chairwoman of the Board for The Children’s Heart Foundation after serving on the Governance committee from 2020 – 2022, and serving as Board President 2014 – 2019.
We are experiencing a shortfall so if you haven’t made a donation this year, please consider giving at whatever level you can!
please consider donating to the Micah Mason Foundation so we can support both NPC-QIC and FON in their life changing work.
We are having a Donor Meeting Tonight to talk about HeartWorks and the wonderful work they do and why we support them.
Would you like to join them on our Wall of Awesome? Every donor who is first in a donor level gets a special gift. Donate Now!
We will be having a Donor Meeting Tonight to discuss our partnership with the Children’s Heart Foundation and our named…
We are a day in and no one has donated to the cause yet, so the first person to donate get’s a special gift from the foundation!
Welcome everyone to our Annual Fundraiser! We had a very successful Capital Campaign last year so this year we decided…
Come play games with us, or watch us play games, and pledge to the foundation in the mean time!