On this episode of Sharing the Hope we speak with Lacie Patterson, a mother of a young man with Hypoplastic Left Heart Syndrome (HLHS). We speak with Lacie about her journey of involvement in the Congenital Heart Disease community, from volunteering at her local children’s hospital to her leadership work within the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC), and her work with Sisters by Heart.
Tune in for our second episode, an interview with Dr. Katie Bates. Katie is a pediatric cardiologist at the University of Michigan and a member of the NPC-QIC executive leadership team. She shares with us her work with the National Pediatric Cardiology Quality Improvement Collaborative or NPC-QIC for short. The goal of NPCQIC is to improve the medical outcomes and quality of life for Single Ventricle (Hypoplastic Left and Right Heart Syndrome, HLHS and HRHS) Congenital Heart Disease (CHD) patients, and their families.
Welcome to the first episode of Sharing the Hope. On this episode we interview Dr. Jack Rychik, a pediatric cardiologist at the Children’s Hospital of Philadelphia (CHOP) about his work with the Fontan Outcomes Network (FON). The Fontan Outcomes Network is a multi-hospital collaborative organization with the goal of providing the best long term care possible for patients with Single Ventricle Congenital Heart Disease such as Hypoplastic Left Heart Syndrome (HLHS) and Hypoplastic Right Heart Syndrome (HRHS).