Check out our new video all about the Todd and Karen Wanek Family Program at the Mayo Clinic and HeartWorks. These groups do some amazing work in the field of research and development for our HLHS warriors.
Whatever stage of the journey you are on, I highly recommend looking into the Todd and Karen Wanek Foundation, and the HLHS Consortium, and see if there are any ongoing studies you can be a part of.
Todd and Karen Wanek Family Program: https://www.mayo.edu/research/centers-programs/todd-karen-wanek-family-program-hypoplastic-left-heart-syndrome/overview
HLHS Consortium: https://www.hlhsconsortium.org/
HeartWorks: https://www.heartworksinc.org/